The Paul Sartori Foundation provides a wide range of services to the people of Pembrokeshire.  All our services help people spend as much time as possible in their own home, and to die there, if that is their choice.  We also provide a range of services for patients’  families.

All services are free of charge

Our services are:

To find out if you would be eligible for our services please click here

 

We can provide a range of help to suit the differing needs of the patients, each patient receives a tailor made package of care from the Paul Sartori team. Here are some examples with the names changed:

Mr Freeman

Mr Freeman and his wife are both in their 90s.  They have two visits from social services carers during the day.  Mr Freeman has end stage heart failure and often becomes breathless in the night.  He has long periods of sleep apnoea.  Mrs Freeman usually sleeps in a chair next to his bed.

PSF provide help one night week to allow Mrs Freeman to get a proper night’s sleep.  She will not accept more help than this, but is very grateful for the one night.

 Mrs Inglis

Mrs Inglis has rheumatoid arthritis and lymphoma.  She also has leg ulcers which are dressed by the district nurses.  Her mobility is severely limited, but she is determined to remain in her own home.  She lives alone.

An NHS funded care package provides daytime .  PSF provides 3 nights a week of care and has also provided several items of equipment and telephone support ‘out of hours’ when she has had specific worries or queries.

Mrs Davies

Mrs Davies has advanced metastatic breast cancer.  She has an NHS funded care package that provides day visits.  PSF provide night’s care.  These are very busy nights as Mrs Davies requires frequent changes of position and pad changes.  She is also very fearful and needs a lot of reassurance.  A referral has just been made to one of the PSF volunteer complementary therapists for help with relaxation and sleeping.

Mr Davies is happy to leave his wife with friends for short periods to go to local shops, but when he needs to be out for any longer, he asks for additional help from PSF.  He is starting to get quite tired, so we have persuaded him to consider having some regular, scheduled, day respite.

Mr Smith

Mr Smith has Parkinson’s disease and dementia.  He has four care visits a day from an agency.  This is part funded by social services and partly from Mr Smith’s attendance allowance.

PSF provide a nursing assistant for 3 hours a week to enable Mrs Smith to go shopping and have her hair done.  She enjoys the break and Mr Jones enjoys having someone different to talk to and reminisce with.

A few months ago Mr Smith developed a chest infection.  At the request of the District Nurses, we increased our input at short notice to prevent Mr Smith being admitted to hospital.

Mr Daly

Mr Daly has end stage respiratory disease.  He had been in hospital for 8 weeks and was going home with a social service funded day care package.  His wife was anxious as his condition had deteriorated and the ward reported that he has been slightly aggressive and confused at night.

The ward asked PSF if they would provide cover for his first 2 nights home.  He was a little confused and agitated on the first night, but the second night he was settled.  Mrs Daly was happy to manage without any further help.  Mr Daly agreed to become a ‘standby patient’.  If he deteriorates, they know they can contact us for additional help at short notice.  We will make regular contact by phone.

Miss Jones

Miss Jones’s niece has looked after her aunt at home with no outside help for months.  Miss Jones has dementia.  The GP and District Nurses feel she probably has an underlying cancer as she has lost a lot of weight and become much more unwell recently.  The decision has been made not to investigate her symptoms.  Last Friday she became bed bound and increasingly breathless.  The niece has not had more than 20 minutes sleep at a time for about 4 days and is exhausted.  She has reluctantly accepted that she should have some help.

The DNs feel Miss Jones is dying and asked us if we could provide any help over the weekend.  They are making an emergency application for NHS funded care, but would be grateful if we could provide cover in the meantime.  We provided night care over the weekend and will review this day by day.

The niece is happy to provide day care, including a bed bath, but was nervous about doing this.  A PSF carer visited to do the bed bath with her on the first 2 mornings and she is now happy to continue doing this on her own.

 

Mr Thomas

Mr Thomas has motor neurone disease.  At the time of diagnosis he and his wife were referred to the PSF Support Worker.  With her help, the couple found it easier to discuss Mr Thomas’s situation.  They have drawn up an advance care plan detailing Mr Thomas’s wishes about his care.  He has always been adamant that he wants to die at home.

To the astonishment of all the health care team, he and his wife have managed until now with virtually no hands on help, apart from a couple short bursts of 24-hour care when Mrs Thomas had to go away.  4 days ago, Mr Thomas was admitted to hospital with a chest infection.  Despite antibiotics, he is deteriorating and wishes to go home to die.  He is likely to need injections and careful assessment 24 hours a day to find the correct balance of symptom control drugs.  The District Nurse team will do this during the day and evening.

PSF supplied a profiling bed, pressure relieving mattress, bed table, bed pan and sliding sheets and will provide a registered nurse overnight.  When an NHS care package is in place, PSF will reduce their input, freeing staff up to respond to any other urgent referral.

Please do not hesitate to get in touch to find out whether the Paul Sartori Team can help